Hello Everyone

ok I will go first. My name is Donna, I have NF1, I am 41 years old and have been married almost 15 years. We live near Atlanta. I have one child, he passed away in Nov 2001 from cancer related NF.

I'm new here this is my first post. I have NF and so do my two children Jen and Patrick who are also both on myspace. I hope everyone has a nice day. I'm off to work shortly. I see the time here posted as 9:42 am is that an error or is that the time some where else?
I'll be back when I more time,
Thanks for the new site.
John

Hi!
My name is Pam, go by Val or Valkkyrrie as nicknames on the internet...I have an 11 yr old daughter with a severe case of NF1, tho I think she is more a mosaic, or possibly has other diseases as well. I take her to the Mayo Clinic in Rochester, MN for treatment. We live in the Black Hills of SD. I will start with that and add more later. I hope all who read this has a great day!

My Name is John, I have NF1. I am 49 years old.I was diagnosed at age 18 during a physical for enlistment into the army. needless to say I wasn't allowed to enlist. My NF has been relatively mild but it has continued to progress as I have aged. some will know me from the CTF chat room.

I am a 38 yr old widowed mom of 2.My husband died in 2006 from esophageal cancer,we have 2 girls, our youngest was diagnosed with NF1 at 3 months old, there was no family history but the docs thought there may be a gentic connection between her NF and his unusual cancer (there is a protein I think its protien 63 or something) that effects the same chromosome as the Nf gene, that is linked to odd cancers.Anyway,she is currently 4,she has infantile spazms (seizure disorder) at 2 months and a malignant brain tumor (medullablastoma) at 22 months,she underwent 6 rounds of intense chemo and stem cell transplant and is so far doing well but has developmental delays.Our 7 year old has no known issues,I have a myspace page also www.myspace.com/daradd