Donnalynn's story

I don't have much of one really. We are not sure where my NF came from. The only other person in my family that had it was my son Brandon. He passed away in 2001 when he was 17 from cancer related NF. He first had to have his right leg including his hip amputated. The tumor was 19 cm big, that was in Jan 2000.the tumor was 19 cm big, that was the size of his head when he was born.